This Mom Blogger With ALS Wants Other Disabled Parents to Know They Aren't Alone

Imagine you’re a young mother, dealing with the relentless physical demands of a baby. You know, the ones like making sure they don’t stick something in their eye, or picking them up and putting them down for non- stop mealtimes and diaper changes. These are demands that can sap any able-bodied person’s energy and mental sanity. Now imagine you’re that […]

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Patrick Quinn, Co-Founder of the ALS Ice Bucket Challenge, Dies at 37 after 7-Year Battle With the Disease

Unless you spent the entire summer of 2014 offline, you'll remember the viral Ice Bucket Challenge. Everybody from Oprah Winfrey to Miley Cyrus took the challenge, which involved taking videos of themselves dumping buckets of ice water on their heads, sharing the footage online, and nominating others to do the same. But the most important step was donating to ALS […]

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Injection of virus-delivered gene silencer blocks ALS degeneration, saves motor function

Writing in Nature Medicine, an international team headed by researchers at University of California San Diego School of Medicine describe a new way to effectively deliver a gene-silencing vector to adult amyotrophic lateral sclerosis (ALS) mice, resulting in long-term suppression of the degenerative motor neuron disorder if treatment vector is delivered prior to disease onset, and blockage of disease progression […]

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Biologists identify promising drug for ALS treatment

A drug typically used to treat hepatitis could slow the progression of ALS, also known as Lou Gehrig’s disease, according to new research by University of Alberta scientists. The drug, called telbivudine, targets a protein called SOD1 that misfolds in most cases of patients with ALS. “We showed that telbivudine can greatly reduce the toxic properties of SOD1, including improving […]

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ALS society lobbying New Brunswick and Nova Scotia governments for funding

The ALS Society of New Brunswick and Nova Scotia say they require funding from the provincial government to continue assisting those living with the incurable disease and their families to live normal, high-quality lives. On Wednesday morning at the Nova Scotia Legislature, the organization called on the province to provide $140,000 in annual funding which they say would cover about […]

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